Okay so previous visitors to this blog will know that i have a residual and active pituitary gland tumour in my head which has caused a growth hormone condition called acromegaly. The tumour and acromegaly are controlled through a 30mg injection of Sandostatin LAR every three weeks at The Christie in Manchester. One of the …
This last week a piece I wrote about my patient experience at The Christie made it onto their website Really appreciate the opportunity to make my feelings known and all on the same day that George (grassy head) grew some hair! Acevous. Click the link to have a read
Apologies for the dramatic title of this post but it was clearly an attention grabber Well we all have our little hurdles and challenges in life and i know people right now going through considerable challenges with their little boy’s health but anyway life is all about dealing with things that come your way and …
Fantastic television coverage of a patient diagnosed with a pituitary tumour. Watch the epidose and listen to Sarah’s story. Series 3 episode 13 http://www.channel4.com/programmes/24-hours-in-ae/4od#3543609 Please note that i had most of my pituitary tumour removed in November 2012. Then in the last 4 months whatever residual tumour remained became active and caused a secondary condition Acromegaly …
Thanks to the Acromegaly Support Community on Facebook i came across a fantastic article written by John Danzig on the new guidelines for the treatment of acromegaly who is a medical journalist and also suffers from Acromegaly. Have a read of John’s article and click the above link.
Recently, i have been contacted by a few sufferers of pituitary tumours looking for further information on these tumours, related conditions and the treatment involved. In doing my own research, I came across a cracking book on Amazon, Management of Pituitary Tumours by Powell MP, Lightman SL and Laws ER Humana Press 2003 that i purchased and have read …
Are you a patient with Acromegaly? Have you been on daily injections? Well if you answered yes to both of the above could you help a student at Cambridge University and complete a short survey? Here’s the information from the student and a link to the survey. Thanks. >>>>>>>> Hello, My name is Nadia Jesus and …
Waiting on news from The Christie about my forthcoming operation (chased this morning with Prof’s lovely secretary who is chasing Salford Hope for me) has given me more time to research the endocrine system and familiarise myself with the basics of the pituitary gland which is also known as the master gland. I do have …