So this week i was back at The Christie for baseline blood tests along with the Glucose tolerance test.
The results from the baseline tests (which they took and sent straight up/down to the lab) were fantastic. My prolactin level was down from post op 1800-2000 down to a fabulous 88, my cortisol level was within normal range and testosterone was up from post op less that 1 up to just over 6! Fantastic results.
Yesterday, i was due to get the all important MRI results back along with the Glucose tolerance test results. In the morning i phoned The Christie and spoke to a cracking registrar Dr W who confirmed that I and my results were being discussed later in the day at the group meeting that takes place between the Doctors, Specialists and nurses etc.
So i waited all day for the call but it never came. At 6pm i was pretty low and if it wasn’t for Amy getting the call that she had been successful in a recent interview with her job, Neil getting the all clear from Cancer then I’d have had to go for a Maccies
Anyway, at about 8pm just as I was leaving the flat the phone went and unbelievably it as my Surgeon Mr G from The Salford Royal. What a lovely chap he is!
He said that the MRI imagery was pretty good and he doesn’t think he can see any residual tumour but that if it invaded the cavernous sinus bone as he initially suspected then he wouldn’t be able see it until it grows further so no repeat surgery and he will see me in 3 months. Bang tidy!
He went on to say that the blood results from Tuesday had real positives that we already know about but the glucose tolerance test showed slightly higher GH levels (1.2 so less suppression than required) than those taken after surgery.
He said that Prof T is going to get me back into Christies and treat himself and see how we go on. He said that the increased gh could be caused by residual tumour but the that the risks of going back in were too high. Specifically, damaging the carotid artery or damaging normal pituitary function which he says he is not comfortable with at this stage.
So out of the woods to some extent and some work to do for Prof T and his team in treating the Acromegaly.
All in all I still feel a bit funny after surgery with ups/downs but I am much happier with the results, the feedback from Mr G and everything in general!
Thanks for reading and thanks to all the NHS staff who took part in the DickyMoo conference