So it’s been 48 hours since my operation and so far everything has gone really well.
My recovery was much better than anticipated and my only issues are lack of sleep and headaches. All things considered pretty amazing to think about the procedure!
So far no evidence of csf leaks albeit have had some clear runny fluid from my nose. Dr B (one of the cracking surgeons) just came around and he isn’t worried about the fluid. He says they rinsed the cavernous sinuous out during surgery so it’s probably just remnants of that fluid.
Today I’m on a growth hormone day curve test which will see blood taken every two to three hours. Apparently it’s necessary to check that the acromegaly has come under control with the removal of the tumour. They are looking for reduced igf1
Dr B also commented that my prolactin level was already reduced the morning before surgery which we are putting down to the post diagnosis treatment with cabergoline and octreoride.
It’s confusing me though as the tumour was only secreting prolactin but it was also causing the anterior pituitary gland to produce excess growth hormone. Think I may have confused myself somewhere!
So plan is to get these test results back late Thursday then see surgeons and see if it will be necessary to have further scans to look for residual tumour then consider the options.
My pal on the ward has been told that they couldn’t get all of his tumour out and that he will need radiotherapy within a few weeks. He has taken it really well and he’s a credit to the pituitary gang!
I have a really good feeling about my outcome and reassured by surgeons feedback i am hoping that I’ll be good to go pretty soon!
Albeit it’s been a relatively pain free experience, I’ve seen and heard some really sad things on this high dependancy ward.
All the staff do an amazing job and albeit some deliver care at different levels, I can’t fault any of them.
One particular Nurse M has stood out. She has consistently gone above and beyond with every patient. Clearly a vocation or calling for her. Really hope that recent changes to staffing levels and areas of responsibility don’t impact on her attention to patients care. She’s a credit to the NHS as are the other staff I’ve met!
It’s all to easy to complain about delays in prescribing meds etc but there are alarms are going off all the time and there’s one noise that gets the staff moving at lightning speeds! My advice being in the care of these people is to look at how busy everyone is generally and the variety of their workloads. Very much a case of all hands on deck!
Oh and I’ve just spent an hour with a third year med student researching pit tumours and acromegaly. Hope I gave her some interesting perspective.
The endocrine system is really interesting and I should have paid more attention at school!
That’s it for now. Time for a snooze