Hi, not written anything for a few days so thought i’d take the opportunity to bring you up to speed.
On Tuesday 17th July 2012, it will have been exactly one week since i was last at The Christie. I have a scheduled appointment with Prof T next Tuesday where he will update me on the tolerance test from last week but the current priority for me is to hear from Mr G, the neurosurgeon at Salford Hope. Mr G will be performing my Endoscopic Transsphenoidal Surgery to remove the tumour.
Here’s a short video to explain the surgery over in the US:
I know its only been two weeks since the Prof referred me to surgery but waiting to hear from Salford Hope is literally driving me around the bend. The hinges on my postbox are quite literally getting hammered and the postman has clocked me watching out for him
Anyway, i have just dropped a nice email to Prof”s secretary to see where things are up to with Mr G so I should hear something soon. If not i’ll have to wait until next week’s appointment to update you on the tolerance test and surgery.
What else has been happening?
The first day after taking half a tablet my head felt a little more fuzzier and i had an intermittent and ever so slight burning sensation around my nipples. Ooh err ….
Then next day I noticed that the galactorrhea (nipple discharge albeit i’m told it’s not milk ) had stopped.
Did you know that Prolactinomas are the most common type of pituitary tumor? Symptoms of prolactinoma are caused by pressure of the tumor on surrounding tissues or by excessive release of prolactin from the tumor into the blood (causing a condition known as hyperprolactinemia). So the tumour is secreting excessive prolactin which is turn causing the nipple discharge.
The day after taking the next half a tablet i noticed a definite improvement in libido Wehey!!!!!!!! Now albeit this is pleasing and i hadn’t lost this altogether we already know that my testosterone levels have been really low for a while and i am rather hoping that the cabergoline is working it’s magic in trying to suppress the tumour, reduce prolactin production which in turn should allow the testosterone level to come back up.
Perhaps the increased libido is a sign that this is all happening or just a side effect of the cabergoline as Nurse M at The Christie warned us against (if that’s the right word) addictions to sex, gambling and alcohol
Ah well it’s time to refer my handy Greenspan’s Basic & Clinical Endocrinology: Eighth Edition which was recommended to me by my pal Trys over at Acromegaly Diary.
It really is a cracking book albeit quite a lot goes over my head
What else can i rabble about? Oh yes not sure if i have told you but i wanted to have copies of my MRI results showing the lodger upstairs so here’s what i have done about it:
- Got the endocrinologist at RAEI to write a letter to the head of the x-ray department giving me permission to have copies of my MRI
- I hand delivered this letter to x-ray department who told me that i would have to pay £10 which i agreed to there and then. This wasn’t possible and i was told that they would write to me
- An invoice from NHS Trust for £10 arrived on friday 13th July 2012. I sent them a BACS payment that same day and confirmed this to their accounts department
- I am now waiting to hear when i can collect the disk with my mri images and i will be sharing on here as soon as i get them