The waiting game

It’s been a week since my last post and still no news of surgery I’ve been away for a few days to the lakes with my girly (which was fab) and i’m catching up with some work. Anyway, just a few things to mention: The cabergoline seems to be taking hold. The first 24 hours …

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My mum’s always got cake

It’s a few days before my birthday and I’m still waiting on a date for the removal of the little sucker upstairs! Have I mentioned that my family and friends are being absolutely fantastic about my condition? Well with the exception of one person, everyone has been fantastic so thanks to all. Amy (my chickiedoodledee) …

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Do you know anyone with Gigantism?

Just had a nice email from a lady called Kristina from Catersnews. Please see the below, can you help her? From : kristina@catersnews.com Subject : Gigantism Message Body : Hi Dicky, My name is Kristina and I’m a features writer for a company called Caters News. I write features for women’s magazines in the UK. …

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Take a look at my MRI results

Well i promised i’d get copies of my results and after some form filling, a nice letter from my endocrinologist, a £10 payment to the NHS and help from a nice lady at RAEI x-ray department i picked up my disk of images this morning. I had to run a little programme to view the images and …

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What’s happening

Hi, not written anything for a few days so thought i’d take the opportunity to bring you up to speed. On Tuesday 17th July 2012, it will have been exactly one week since i was last at The Christie. I have a scheduled appointment with Prof T next Tuesday where he will update me on …

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Help! I’m Turning Into a Giant (not me)

Ok so i have a Pituitary Macroadonema and Acromegaly but there are so many others out there with really terrible and life changing symptoms. Here’s a series of video’s that detail a few peoples journey. Apparenty my acromegaly must have started during puberty but i don’t have gigantism  Please do watch these with interest and …

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The power of music

Ok so in a previous life I ran corporate nightclubs for a living. As a General Manager of large late night establishments, I saw the very best (and worst) of towns and cities across the North West of the UK + Yorkshire. It’s funny that one of the things that helped with the diagnosis of my little …

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Christies call over low cortisol

Ok so it’s late Friday afternoon and I’ve just had a call from Christies to say that following the blood tests taken earlier in the week my cortisol levels were extremely low and out of range. Nurse S said that Prof wants me back in at 8am this coming Tuesday for an insulin tolerance/stress test …

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